A penny for your thoughts

   Do you think migraines should be considered a disability?

New year, New med, New me

    At the beginning of December I was put on a new medication for my P.O.T.S. and I am pleased to announce that so far it's helping! 

   Being on the botox, keeping my iron and vitamin D levels up, and doing a workout routine that helps my core, back and neck (not like a hardcore workout, but one that gets me moving and helps me not to lose muscles).  This has helped a lot with the chronic migraines but as far as the daily headaches I couldn't find really anything that helped.  But I did notice that when my P.O.T.S. was better, my headaches were better.  So when it was time to see my neurologist, I mentioned it to him.  "It's not so much the migraines that are keeping me from doing things, the botox has helped with that.  But now it's the P.O.T.S. that's keeping me from participating in life".  He decided to put me on another form of salt tablet, in addition to my current salt tab (thermotabs).  It's called "Fludrocortisone", It is a form of steroid.  It is helping me be able to do more things, like be out in public without feeling like I'm going to pass out, but I still have my good days and bad days.  I do still have hope that one day, soon, I'll be able to do everything I want to do without the chain and ball of migraines or headaches or the symptoms of P.O.T.S.  For those of you still out there struggling, don't give up!  Good things are coming your way, just remember, it takes a little poop in order to grow beautiful flowers, (as our dear friend kandee Johnson would say).